39 Pounds of Love | 2005
Ami Ankilewitz was diagnosed with Spinal Muscular Atrophy (SMA)--an extremely rare and often fatal form of muscular atrophy that severely limits his physical growth and movement yet at 34 years of age--he continues to outlive a doctor's prediction of life expectancy by 28 years. And counting. Ami, who weighs only 39 pounds, works in Israel as a 3D animator and creates his art despite the fact that his bodily motion is limited to a single finger on his left hand and in doing so, continues to redefine notions of a "limited" life. Ami journeys in search of the doctor who predicted his early demise. Along his journey, Ami attempts to come to terms with another major incident from his past and to complete a lifelong dream: To finally ride a Harley Davidson.